Two youngsters Ollie, 6, and little sister Amelia both suffer from Batten disease, a generic childhood nervous system disorder that ultimately makes patients unable to walk, see, eat or breathe. But the pair got a special visit from Prince Harry.
Harry has met the siblings before, when he spent time in the hospital with both of the children last October.
Ollie and Amelia’s mum Lucy and husband Mike Carroll use Facebook to document and raise awareness of the family’s struggles called Ollie’s Army Battling Against Battens.
“For an hour Prince Harry sat with us talking and playing with our children, laughing and making memories,” a post on their social media page read. “The very thing out children want the most in life, to be happy and having fun. We feel so much pride knowing that Ollie and Amelia are touching the lives of the people they meet with their love and their strength. The love, the support and the laughter within that treatment room on Tuesday will stay with us forever.”
“From the bottom of our hearts we thank Prince Harry for his support, his time and his kindness towards our family and our journey with Batten Disease. It was truly incredible to watch him with our children and to have the opportunity to talk with him about our journey with Battens.”
Along with the Prince little Ollie even got to meet his favourite musician last month. After Ed Sheeran heard their touching story he invited Ollie, Amelia and the family to his concert in Manchester, England.